Wednesday, January 19, 2011


About Camryn.... I called to check on her this morning and found out that her ventilator failed. She had to have a new ventilator brought in and was bagged in the mean time. I thought they lost her 3 times, but now that I have talked with them again (while I was more calm) I found out that she was only really "lost" once. They had to bag her quite a bit- but with her trach I guess things are a little more difficult. We did not receive a call- not on my phone, Kevin's phone or the room phone. They said that my number was called- but I don't show it. Also, there isn't a message. I went to see her and she is still sedated. Her little chest is still red - but that is to be expected. She is still alive though- my little girl is tough :O) I will post more pictures of her later. Thanks for caring about Cami and our family. Cami was born via c-section on August 18, 2010 at 9:41pm She weighed 3lb 15oz and was 16 1/4 inches long. She was born at 31 weeks to the day (9 wks early) We knew about the Hydrocephalus when I was 16 weeks pregnant. We didn't know about her other issues until after birth. I love my daughter any way that she is. I know that some people would not want her because she is "disabled" but I don't just love my children. I am IN LOVE with my Cody & Cami. Since her hospitalization- she has developed a ton of brain bleeds, has gone blind, started having seizures, one lung collapsed due to the machine, etc. She has had several surgeries/procedures and she is still here. She was weighed 2 days ago and weighed 12lbs 5oz. She weighed 11lb 8oz the day she went in. So, she isn't gaining weight very well. She has lost her "suck" reflex as well. Camryn is very sick, but you know what? I LOVE HER!!!



  1. Oh Christy,
    How scary !! Poor little CAMI !! SHE IS SUCH A FIGHTER.. We will continue pray for all of you . Give Cami a big kiss from all of us here in Montana..

    Fight Cami Fight !!!

    The Campbell Family

  2. Oh how terrifying! I am calling your name and Cami's in prayer. Holding you close...

  3. Christy, I'm so sorry that Cami is sick. I know that she is your precious little girl and it must scare you so much, to have these things happen to her. I'm praying for her... Dear Heavenly Father, please heal little Cami so she can come home to her family and everyone that loves her so!

  4. May the LORD bless you and keep you. May the LORD show you his kindness and have mercy on you. May the LORD watch over you and give you peace.

    Praying for you,
    Nancy in Michigan

  5. I know that you don't know me - and I can't imagine how busy you must be with little Cami and another little one to care for. But if you could take just a moment and send me a quick e-mail at:

    Even though I can't donate financially, I do have something else I'd like to donate.

    Praying for your little family!!

  6. Stay strong baby Cami! I pray that there are no problems with the new ventilator & she begins the healing process. We are praying everyday for her recovery. Jen, John & Landen

  7. I found my way to your blog via BabyCenter. Like you, I had a child due in October. And like you, my baby was born prematurely. My son was born in July - a 27-weeker. Every day, I thank God that he is a healthy little boy today. And I think of Cami, who has had far more than her fair share of challenges. And I think of her parents, who have had far more than their fair share of heartache. And I say a little prayer for you all.

    My sister is disabled - CP. She has made us stronger as a family and more compassionate as individuals. She is now a wonderful young woman, and she has accomplished far more than we thought she would be able to when she was a baby. She has devoted, caring parents that helped her become the strong, happy woman she is today. It is very important for disabled kids to grow up in loving families. I'm so glad that God gave Cami to you, Christy.

    "Nobody said life would be easy, they just promised it would be worth it."

  8. We love her too, Christy - and you and Kevin and Cody, too! *hugs* Nick and I are praying...

  9. Christy, I am praying for little Cami and you and your family every day! She is tough...and I am guessing she got that from her awesome and faithful momma!

  10. Continued prayers for little Cami. And for you and Kevin as well.

  11. Of course you love her. She is your baby and she is beautiful and special no matter what!

    I have been following your blog and praying for your family. I am sorry I cannot offer more than that.