Friday, September 17, 2010
When I went and saw my beautiful baby girl tonight she drank her whole bottle in the allotted time of 30 minutes and was an absolutely beautiful sight! I talked with her neonatologist who upped her bottle feedings to 2 times a day *yay* I asked him about her abilities... he said that she functions very well for a baby- however, she may have to go home on a feeding or g tube if she doesn't do very well as we up her bottle feeds. He also told me that until all the fluid leaves her head we will not know how much of her brain didn't form. The neuro radiologist who saw her first mri's said that part of her brain did not form. We have known this for quite a while.. but to have it said again is something else. We do not care what her ability(ies) or disability(ies) is/are she is our daughter and we love her. If any of our family or any of our friends say anything negative about my daughter- I will cut them from my life FOR GOOD. I will not even attend their funeral. If I hear someone use the words retard, retarded, water head, big head or any other derogatory remark they will be cut. They will cease to exist in my world. I always wanted to have a child with down syndrome. I know a LOT about down syndrome- I have had to learn about hydrocephalus. So, now I am getting to know this thing that caused my daughter's brain not to form all the way. I HATE it!!!! I hate that her brain did not form!!! I LOVE my daughter but I am angry about her brain not forming because of the stupid fluid.
at 6:28 PM