Updates

Cami came through surgery okay. Sorry it took so long to update, but I can't get on my blog on my phone. She has 2 incisions on her little head. One is where they removed her drain and the other where they put in her new shunt. She has a new incision on her little belly where they have to bring down the tubing for the fluid to be able to drain into the abdominal area. She did okay in surgery and woke up a bit later. She is still sick, but is no longer in the top 3 of the most critical kids in the icu any longer. She is still up there, but not in the top 3 *thank God*. She is still on the ventilator and will be for a while. Now for the crappy update.... I do not think that Cami can see anymore. I think she is either blind or has very limited sight. She will not follow or focus on anything. I don't care if it is right in her face or a few feet away- we have tried from an inch all the way to 3-4 feet away. When her room light is off and we turn it on- she doesn't squint or respond at all. Also.... my camera has a double flash- it has always been very hard to get a picture of my kids with their eyes open when I have to use my flash- tonight I used my flash about 20 times and she never closed her eyes. I brought this up to her nurse who watched me do all of the above and even put a bright colored stuffed animal in her face and moved it around and she never followed it either. So, the nurse is going to tell the Doctors about it. I know that Cami could see before because she would follow us with her eyes and follow toys. She would try to focus sometimes and cross her eyes doing it. Also, she would close her eyes when the flash went off in her face. She doesn't do any of that anymore. She saw an eye specialist after she left the NICU and they said her eyes were perfect. Well, they no longer are. So, I don't know if it is the brain bleeds or seizures or what- but my daughter does not see any longer. I also don't know if she hears anymore either because the nurse was snapping her fingers in her ear and she didn't move or show any sign of hearing it. Her hearing was fine before as well. I know that they can check her hearing- but I think with her vision- it is a "wait and see" thing.

I want to say thank you to all of you who have donated to our stay at the Ronald McDonald house and to us. Our Ronald McDonald house bill is now paid in full!!!! Of course we continue to be charged $10 a day- but at least we are current. I want to say THANK YOU from the bottom of my heart to each and every one of you who have donated to help us. Financially we are ruined right now and you have helped us tremendously. Not that it is Camryn's fault, but once she came home from the hospital- with all of her appointments between the driving and the co-pays & medications we went thru thousands of dollars (we live way out in the middle of nowhere and have to drive over an hour each way to her appointments) We are behind on all of our bills- we are possibly going to lose our home because we can't catch the payments up and they won't work with us. Our church can make one payment but the bank wants more than that. So, on top of all of this stress with our baby we are now possibly going to lose our home that I have lived in for almost 11 years. So, your help has really helped us right now. We at least have the Ronald McDonald house paid- we have food to eat and with the money that comes directly to us- we can pay off the oral surgeon that did Cody's dental work. I am very emotional right now and each time that I get an email telling me that someone called and made a donation for us- I cry. When I get a check in the mail here- I cry. I cry a lot these days. I truly love all of you. I thank you all for your prayers and your donations to help our family. We have never been in such a financial mess in our lives. Thankfully our vehicles are paid off.

So, again- thank all of you who have helped our family. You are all Angels and we appreciate it more than you will ever know.

My email address is christyfaglie@yahoo.com if you would like to email me.

I hope you enjoy these pictures taken today